Well, the new oncologist I go to told me that the report was nothing to worry about, but if I was still worried for me to go to my surgeon and see what she says. ???? Apparently I have an inflammation in the area under my arm where they took out the lymph nodes, and it has shown up on previous PET scans, although Dr. Diaz never said anything about it. I don't even remember seeing anything written about it. I will go get my blood markers checked next week, as another way to check on the area. It is not an infection, but an inflammation??????? Also, he wants me to get a second opinion on my kidney as it has really gotten swollen and there may be some relationship to my right side being in such pain. I told him I had gone twice to the doctor about that, but urologist didn't want to do anything about it....felt it has been there for a long time and he may stir up trouble. My oncologist said," Well he probably thought you were dying of cancer anyway, so why cause more trouble." ???????? So, bottom line, there is nothing wrong, but I am getting more second opinions. Now comes the killer or should we say the most stunning part of this letter.
When I went to Dr. Rocha instead of Dr. Diaz it was because I wanted a second opinion on being taken off Herceptin. DR. Rocha reassured me that Dr. Diaz's treatment was right down the line, proper and thorough. Although he said there was one more minor test he could give me that Diaz didn't give me and it has a very small chance of being anything that could help me. Well, they told me they would run the test and have the results by this visit. Well, they didn't....so the doctor reordered them. I stood there last time and heard him order the tests, so figured they got lost in my change of offices. So that was it and we went home. Well, I was just laying down and the phone rang and lo and behold it was Dr. Rocha. They found the test results and YES I did test with the right results. He was so excited, he kept repeating.. You just don't realize what this means, you can take a pill and it will keep the cancer from coming back!!!! He was so excited, he wants me to come in Tuesday, they will start giving me this pill, I don't even know more than that. So, bottom line, just don't be sure of anything you are told as it can change at any time. ??????? So, that's my story and I am as confused as you. But I think I am ok. I love you all, Love Barb.
